Critique is an art form that requires a light touch, with a splash of irony and good humour to soften the blows.
Use Your Muscle to Help Save Theirs
Please join MND NSW for the charity walk on 4th May 2014 in Tweed Heads to raise funds for research and support for people living with Motor Neurone Disease. The walk will commence at 10am from Chris Cunningham Park, Cnr Wharf and Bay St, Tweed Heads. The distance is approximately 5.5km and is wheelchair and dogs-on-lead friendly. We encourage you to walk and wheel with your family, friends and pooches.
Live music from April Collection. Sausage sizzle by Lions Club of Coolangatta/Tweed Heads.
Buy a keyring for $4
Pre-Registration (before 27th April 2014) and save $10 per adult and $5 per child. Why not get a team together? Member with MND = Free Adult = $30 (including MND T-shirt) Adult = $25 (not including MND T-shirt) Child 5-16yrs (with T-shirt) = $12 Child 5-16yrs (without T-shirt) = $8 Doggies (must be on a lead) = $6 NB: Children under the age of 14 must be accompanied by an adult.
Also known as amyotrophic lateral sclerosis (ALS) and Lou Gehrig's Disease. MND/ALS is a degenerative disorder that affects motor neurons in the brain, interrupting messages that would normally travel along nerve fibres to muscles in the upper or lower parts of the body. This is a muscle-wasting disease, and the increasing weakness in these muscles will progress to paralysis and respiratory failure. There is currently no cure.
Symptoms are most likely to appear after age 40 (NIH 2002), and peak around age 50, in men and women (McCance & Huether 2002). In most cases, the cause is unknown. An inherited genetic mutation is evident in 5-10% of cases, but not all have been identified.
Researchers from around the world are studying genetics, toxins, chemical transmitters, and the use of stem cells, in an effort to learn more about the growth, repair and ageing of motor neurons. The provision of better care is also being investigated. Research funding is urgently needed to continue this potentially life-saving work.
Summary of MND facts: FACT... rapidly progressive and fatal FACT... no known cure or effective treatment FACT... 2 Australians die every day
FACT... 2 Australians diagnosed every day FACT... incredible pain and distress FACT... losing ability to move skeletal muscles, so cannot move their body, speak, swallow, or breathe, but their mind and all their senses are fully functional.
FACT... Average life expectancy is 27 months.
FACT... estimated 1,500 Australians have MND
Australia's MND March of Faces Banners
The worldwide March of Faces project promotes community awareness by producing photographic displays of people diagnosed with MND. The banner project was introduced to Australia by Jackie Williams, an MND Association member. It is disturbing to see that many have died within one or two short years of being diagnosed, and this highlights the need for continued research into early detection and prevention.
The suffering is real
Walk to d'Feet MND - Schedule of events around the country
06.04.2014 Walk to d'Feet MND - Canberra
04.05.2014 Walk to d'Feet MND - Tweed
15.06.2014 Walk to d'Feet MND - Dubbo
14.09.2014 Walk to d'Feet MND - Port Macquarie
19.10.2014 Walk to d'Feet MND - Wagga Wagga
09.11.2014 Walk to d'Feet MND - Sydney
Medical References: McCance, KL & Huether, SE (2002) Pathophysiology - The Biologic Basis for Diseas in Adults & Children, 4th Ed. MND NSW, 2014, www.mndnsw.asn.au/index.php NIH (2012), Motor Neuron Diseases Fact Sheet, NINDS, NIH Publication No. 12-5371, www.ninds.nih.gov/
An earlier Brisbane event is now re-scheduled to the 17th May 2014. The walk will commence at dusk (5 pm) from Roma Street Parklands, and walkers will carry MND QLD candles (which you can buy on the day). Brisbane details at:http://www.everydayhero.com.au/event/walktodfeetqld2014