Tweed Walk D' Feet Motor Neurone Disease MND Fundraiser

Tweed Walk D' Feet Motor Neurone Disease MND Fundraiser


Posted 2014-03-23 by KMJamesWriterfollow

Sun 04 May 2014

Tweed Walk D' Feet Motor Neurone Disease (MND) Fundraiser

Please join MND NSW for the charity walk on 4th May 2014 in Tweed Heads to raise funds for research and support for people living with Motor Neurone Disease. The walk will commence at 10am from Chris Cunningham Park, Cnr Wharf and Bay St, Tweed Heads. The distance is approximately 5.5km and is wheelchair and dogs-on-lead friendly. We encourage you to walk and wheel with your family, friends and pooches.

Live music from April Collection .
Sausage sizzle by Lions Club of Coolangatta/Tweed Heads.

Pre-Registration (before 27th April 2014) and save $10 per adult and $5 per child. Why not get a team together?
Member with MND = Free
Adult = $30 (including MND T-shirt)
Adult = $25 (not including MND T-shirt)
Child 5-16yrs (with T-shirt) = $12
Child 5-16yrs (without T-shirt) = $8
Doggies (must be on a lead) = $6
NB: Children under the age of 14 must be accompanied by an adult.

What is Motor Neurone Disease (MND)?
Also known as amyotrophic lateral sclerosis (ALS) and Lou Gehrig's Disease. MND/ALS is a degenerative disorder that affects motor neurons in the brain, interrupting messages that would normally travel along nerve fibres to muscles in the upper or lower parts of the body. This is a muscle-wasting disease, and the increasing weakness in these muscles will progress to paralysis and respiratory failure. There is currently no cure.

Symptoms are most likely to appear after age 40 (NIH 2002), and peak around age 50, in men and women (McCance & Huether 2002). In most cases, the cause is unknown. An inherited genetic mutation is evident in 5-10% of cases, but not all have been identified.

Researchers from around the world are studying genetics, toxins, chemical transmitters, and the use of stem cells, in an effort to learn more about the growth, repair and ageing of motor neurons. The provision of better care is also being investigated. Research funding is urgently needed to continue this potentially life-saving work.

Summary of MND facts:
FACT... rapidly progressive and fatal
FACT... no known cure or effective treatment
FACT... 2 Australians die every day
FACT... 2 Australians diagnosed every day
FACT... incredible pain and distress
FACT... losing ability to move skeletal muscles, so cannot move their body, speak, swallow, or breathe, but their mind and all their senses are fully functional.
FACT... Average life expectancy is 27 months.
FACT... estimated 1,500 Australians have MND

Australia's MND March of Faces Banners
The worldwide March of Faces project promotes community awareness by producing photographic displays of people diagnosed with MND. The banner project was introduced to Australia by Jackie Williams, an MND Association member. It is disturbing to see that many have died within one or two short years of being diagnosed, and this highlights the need for continued research into early detection and prevention.

Walk to d'Feet MND - Schedule of events around the country
06.04.2014 Walk to d'Feet MND - Canberra
04.05.2014 Walk to d'Feet MND - Tweed
15.06.2014 Walk to d'Feet MND - Dubbo
14.09.2014 Walk to d'Feet MND - Port Macquarie
19.10.2014 Walk to d'Feet MND - Wagga Wagga
09.11.2014 Walk to d'Feet MND - Sydney

Medical References:
McCance, KL & Huether, SE (2002) Pathophysiology - The Biologic Basis for Diseas in Adults & Children, 4th Ed.
MND NSW, 2014,
NIH (2012), Motor Neuron Diseases Fact Sheet, NINDS, NIH Publication No. 12-5371,

!date 04/05/2014 -- 04/05/2014
209976 - 2023-06-16 06:24:03


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