Believes less is more and values experiences rather than material possessions.
Who are the Butterfly Children?
The Butterfly children are the young children who have skin said to be as fragile as a butterfly's wings. This is as a result of EB a rare skin disease where the skin is so fragile and tender that it blisters and peels from the slightest touch.
DEBRA (Dystrophic Epidermolysis Bullosa Research Association) Australia, is a not for profit volunteer based organisation that does not receive any direct Government funding. Dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa (EB). DEBRA's fundraiser for the month is a movie and high tea afternoon.
Our skin consists of two layers: an outermost layer called the epidermis and a second layer called the dermis these layers are 'glued' together by a protein, known as collagen Epidermolysis Bullosa (EB) blocks the body's natural production of collagen protein, which is an important component of connective tissue. With no 'glue' the layers remain separate and the surface layer is lost. The condition is likened to living with third degree burns. If these blisters become infected, they can cause serious problems. Patients need to have their medicated wounds bandaged. The disease does not discriminate, as it affects males and females of any race.
This is what life feels like for Butterfly Children
Aptly chosen, the movie Unbroken is an inspirational real life story of resiliency, perseverance and the power of faith, these are the qualities that keep families living with EB positive and hopeful. It sends a strong message of inner strength, when you think all is lost and are emotionally exhausted, incredibly we find a way to carry us to the next level. A story that focuses on an incredible drive to survive supported by a family who loved and believed he could do more. A film about Olympian Louis Zamperini, who after a near-fatal plane crash in WWII spent a harrowing 47 days in a raft with two fellow crewmen before he was caught by the Japanese navy and sent to a prisoner of war camp. The essence : "If you can take it, you can make it." A must see movie.
The event begins at 2:15pm for High Tea and a Raffle with the screening of the film promptly at 3:30pm. Pre-packaged homemade cakes, sweets and savouries will also be on sale at the event.
To book tickets or if you have any further questions please contact: Cinzia on 0410 456 549
To make a donation and help DEBRA continue its important work, please click here.
Rove McManus Presents: Living with EB: Our brave butterfly children.