Addison's disease is a rare condition that affects 1 in 10 000 people. The Queensland Addison's disease Association is holding a public awareness event aimed at sharing valuable information about the disease, how to manage an Addison's "Crisis" and the auto-immune system of an Addison's person.
The nonspecific symptoms of Addison's disease make it difficult to detect, with most patients being misdiagnosed or doctors miss this diagnosis leaving people to die. Symptoms result from insufficient production of adrenal steroid hormones. The most common symptoms are weight loss, darkened skin, fatigue, salt craving and low blood sugar among others. While a number of causes for adrenal insufficiency exist, Addison's is most commonly caused by an autoimmune response - the body's own defence system begins attacking the tissues of the adrenal glands.
An Addison's crisis is a sudden onset of severe, life threatening symptoms. As such, sufferers must carry emergency cortisone injections at all times, wear a MedicAlert bracelet/necklace to alert people should they fall unconscious. Queensland Ambulance Service is currently training all paramedics to carry and administer this life saving injection – which will save so many more lives.
Given the rarity and elusive nature of this disease, it is essential that the public and health professionals are aware of this burden to ensure rapid identification and treatment of this potentially fatal condition.
Addison's disease can be managed with steroids for life. However, a patient's life will never return to "normal".
RSVP: to 0412 678445 or firstname.lastname@example.org (for seating and catering purposes).
This is a FREE EVENT, all Addison's disease patients and their families, nurses, paramedics and medical students, doctors and health professionals are encouraged to attend.